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Rare Disease Market Research

As part of our work, we often collect information from healthcare providers (HCP) that help us to understand certain diseases or the opinions of healthcare providers about certain topics. Data collection can be in the form of surveys or interviews and often includes the payment of an honorarium in exchange for participation.

In these cases, data relating to that healthcare provider (such as their name, address, institutional affiliation and other information) together is called “Personal Data” and is required in order that we can process an honorarium check. If a healthcare provider elects not to provide their Personal Data, they forego the option to receive remuneration as we would not have a way to know to whom or where to send it.

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